FCCNY PRESENTS:
GENETIC TESTING & ME
A 4-Part Series for the Chinese Adoption Community
Objectives:
- To share information and demystify genetic testing in its risks, benefits, and results.
- To share personal experiences with genetic testing in the Chinese adoption community.
- To explore different thoughts, expectations, and outcomes.
- This is NOT about searching specifically.
Sessions:
Saturday Afternoons, 3:00 - 4:30pm Eastern Time
- January 23 | Part 1: WHY You're Testing (or Not)
- January 30 | Part 2: HOW You're Testing
- February 13 | Part 3: WHERE You're Testing
- February 20 | Part 4: Fishbowl & Open Discussion
Registration is only available at FCCNY.ORG
Members must log in for discounted price.
Join or renew your membership today: fccny.org/join
We have out-of-region membership available, our membership is global.
- MEMBER Chinese Adoptee | session: $5, series: $15
- MEMBER Adoptive Parent or Supporter | session: $10, series: $30
- NON MEMBER Adoptee | session: $10, series: $30
- NON MEMBER Adoptive Parent or Supporter | session: $15, series: $45
There are 4 sessions in this series. They do not build upon each other, you are welcome to attend any individually, or all of them. There will not be recordings due to the personal nature of these discussions.
If you do want to invite others to join, please have them register independently. There will be a zoom waiting room and we will be checking names from registration.
You will receive a few reminder emails and a zoom link will be provided in one a day before the event. There will not be refunds. There will not be recordings.
Questions can be directed to events@fccny.org
Below are details for Part 3, please visit FCCNY.ORG to find info on the rest of the series.
Part 3: WHERE You're Testing
February 13, 3:00 - 4:30pm Eastern Time
Questions we hope to explore:
- What are some of the different testing companies or databases?
- What are the ethical considerations of uploading your (child's) DNA?
- What are the legal considerations of uploading your (child's) DNA?
- Is it legal to do DNA testing in China?
- What are the data security precautions?
Panelists
Dr. Blaine Bettinger
Blaine Bettinger, Ph.D., J.D., is an intellectual property attorney by day and a DNA specialist by night. He entered the world of direct-to-consumer genetics in 2003 with an autosomal DNA test from one of the first companies offering this type of testing. He has a Ph.D. in biochemistry with a concentration in genetics and is extremely interested in the recent developments in genetic genealogy. In 2007 he started writing The Genetic Genealogist, one of the earliest blogs on the topic, and has since authored and co-authored three books and been interviewed for numerous articles.
Katie Mantele
Katie is a Chinese adoptee who has used DNA testing in her birth search. In 2020, she earned a Master of Arts from New York University where she studied Chinese/Critical Adoption Studies. Beginning in 2014, she spent four summers on the staff of an adoptee camp where she worked with hundreds of international and domestic adoptee youths. She currently works in trade book publishing.
Dr. Thomas May
Thomas May, PhD, researches issues at the intersection of medicine, public health and moral/social/political philosophy, with a special interest in issues related to autonomy and healthcare. He has focused on issues of how autonomy relates to self-identity and well-being; the role of autonomy in deciding how rights to genomic information, as well as rights to genomic ignorance, should be framed; and the assessment of risk within the context of other-regarding implications that emerge from genomic information. May’s approach is to carefully parse the relevant considerations, outcomes and justifications salient to healthcare decision-making, and through this to balance potential benefits and risks in a way that is appropriately contextualized to the patient, condition and provider circumstances that frame decision-making. In addition to publishing two books and many articles on autonomy in leading philosophy journals, he has published on related topics in Nature, Science, Pediatrics, Vaccine, American Journal of Public Health, and Milbank Quarterly.
